Contact information: your email address (and name, if you choose to provide it) when you join our waitlist or register interest in research participation.

Research responses: your answers to screening questions on our landing pages, and your answers to questions asked during interviews. Screening answers are collected without your name or email address and are not linked to your waitlist sign-up. Some questions may relate to your health or wellbeing. Health-related answers are sensitive information under the Privacy Act: we collect them only with your express consent, given at the point of collection. You may decline any question asked during an interview. A small number of screening questions are required to determine eligibility; if you prefer not to answer them, you can choose not to submit the form.

Interview recordings and transcripts: with your consent, we record research interviews and produce a written transcript of them. Taking part, answering health-related questions, recording and transcription are asked as separate consents at the start of the interview, and we do not record unless you agree to each one. We then produce a cleaned copy of the transcript with identifying details removed — including names, employer, location, and specific diagnoses, medications and test results — and that cleaned copy is the version our research team works from. Section 6 explains where each copy is held and Section 10 explains how long we keep it.

Technical information: analytics data (pages visited, device and browser type) collected via cookies — only if you consent through our cookie banner (Section 8).